North London Partners in health and care

Learning Disability Mortality Review Programme

Learning Disability Mortality Review Programme

People with a learning disability, autism or both often have poorer physical and mental health than other people.  We know that we need to understand why so that we can make a difference to people’s lives.  As part of this understanding, the Learning Disability Mortality Review Programme – known as LeDeR - is being delivered by the University of Bristol and commissioned by the Healthcare Quality Improvement Partnership (HQIP) on behalf of NHS England.  The overall aim of the programme is to drive improvement in the quality of health and social care services delivery and to help reduce premature mortality and health inequalities.     

The 3rd annual report of the programme has just been published, highlighting the mortality gap for people with learning disabilities- on average women with a learning disability die 26 years younger than the average population and for men the gap is 20 years

NHS England have also published a report on work to translate learning from LeDeR into service improvements.  A number of projects taking place across North Central London have been highlighted as good practice examples including:  

  • Barnet and Haringey community learning disability teams are working with district nursing, phlebotomy, primary care and acute hospitals on a quality improvement project to improve access to blood tests for people with a learning disability
  • Enfield integrated learning disability service and North London Hospice are creating accessible factsheet on palliative care with the aim to create a clearer understanding of the broader role of the hospice and palliative care and make it more accessible to people with a learning disability
  • Camden Community Learning Disability team have introduced an escalation and resolution procedure to empower family carers, paid carers and home managers to raise concerns or challenge clinical care

We need more reviewers across North Central London, from all disciplines, agencies and teams to support this important work and staff are encouraged to undertake the Reviewer Training and be part of the Programme.  Full administrative support is available to support reviewers. Interested staff should contact for more information.


The North Central London Partnership are committed to completing LeDeR reviews and ensuring the learning influences improvements in learning disability care and support