Local health and care systems across London are working together - as part of the OneLondon programme - to improve how health and care services are delivered and experienced. In part, this is about making health and care information more consistent, more joined-up and more available to the clinicians, patients and families who need it.
OneLondon is one of the country’s first Local Health and Care Record Exemplars (LHCRE), designated by NHS England. The OneLondon LHCRE is a partnership of NHS organisations and local government across London, working together with citizens to transform London’s health and care services by joining up information to support fast, effective and safe care.
There are significant benefits to be realised from joining up health and care information, for example, better integration of care, reduced risk of errors and better planning of services to ensure Londoners’ needs are met.
Understanding public expectations of the use of health and care data was commissioned by OneLondon to support development of its wide-reaching engagement programme. The report’s key findings and messages are:
- The public has a strong expectation that their information should be available to clinicians at the point of care to support their individual care. People are surprised to find that this is not routinely the case. OneLondon is expediating this work, and information should be available at the point of care across the Capital, with implementation over the course of 2019/20. This is great news for Londoners.
- Much more work is needed in order to understand what Londoners expect in terms of how their health and care information may be used for purposes beyond their own individual care, for example, quality improvement, service planning or research.
- Historic research and evidence largely focusses on the anticipated benefits and associated concerns around the use of health and care data; we know too little about the way that people weigh-up these respective benefits and concerns in real-world scenarios.
- Understanding public expectations about health and care data use, rooted in the context of reality, is vital to enable health and care systems to build trust and confidence with their local populations in this endeavour.
- OneLondon is committed to a deeper dialogue and deliberation with patients, publics and professionals across London. A genuine and deliberative programme of engagement with Londoners will surface people’s expectations and explore what trade-offs are agreeable to meet these, within the constraints of technical systems and the realities of professional and organisational practice.
For more information how London is joining up health and care data through the OneLondon programme visit: https://www.england.nhs.uk/digitaltechnology/connecteddigitalsystems/health-and-care-data/joining-up-health-and-care-data/
Download the report 'Understanding public expectations and the use of health and care data'