North London Partners in health and care

Improving outcomes for people living with learning disabilities


Some people with a learning disability are not able to communicate they are feeling unwell and rely on people who know them well to be able to spot signs of ill health early.

The Learning Disabilities Mortality Review (LeDeR) programme was established in May 2015 to support local areas across England to review the deaths of people with a learning disability.  

By reviewing those deaths we are able to generate learning in relation to best practice versus poor practice and drive service improvement for people with learning disabilities. The LeDeR reviews are part of a range of initiatives to reduce health inequalities for people with learning disabilities, a priority in the NHS Long Term Plan

The NHS Long Term Plan commitment to the LeDeR programme is welcomed by North London Partners as we strive to deliver the programme and convert the learning into improvement in partnership with families and carers. The inclusion of families and carers is vital in providing a perspective that could make a difference to the care of others.

Local steering groups across north central London (NCL) come together regularly to identify themes from reviews and to work more cohesively with our partners as we head towards the development of an NCL Integrated Care System and borough-based Integrated Care Partnerships

Since LeDeR was fully implemented across NCL in 2017 the programme has received over 100 notifications reporting the death of a person with a learning disability.

It is important that all LeDeR reviews are person centered.  The extract below is an example of a review completed in NCL which ensures we capture who the person was in life while we learn from their death.

LeDeR review training courses

We are pleased to offer more social or health care qualified practitioners the opportunity to complete LeDeR review training and join our pool of experienced reviewers across NCL. New reviewers will benefit from established training and support systems.

For more information please email caroline.mcgirr2@nhs.net

STOP and WATCH

 Learning from local and national LeDeR reviews shows detecting early warning signs of deterioration is key to providing timely and effective care. Some people with a learning disability are not able to communicate they are feeling unwell and rely on people who know them well to be able to spot signs of ill health early.

Across NCL we have adopted the Stop and Watch tool developed by Cumbria CCG to help people recognise those early warning signs. We have promoted this across GP practices and will continue to roll out the initiative to care homes and carers across NCL using pocket sized ‘Z-card’.

Follow-up work is planned to evaluate the effectiveness of ‘Stop and Watch’.

Learning from local and national LeDeR reviews shows detecting early warning signs of deterioration is key to providing timely and effective care. Some people with a learning disability are not able to communicate they are feeling unwell and rely on people who know them well to be able to spot signs of ill health early.

Across NCL we have adopted the Stop and Watch tool developed by Cumbria CCG to help people recognise those early warning signs. We have promoted this across GP practices and will continue to roll out the initiative to care homes and carers across NCL using pocket sized ‘Z-card’.

Follow-up work is planned to evaluate the effectiveness of ‘Stop and Watch’.

STOP WATCH recognising deterioration early warning signs