North London Partners in health and care

Learning Disability Mortality Review Programme


Learning Disability Mortality Review Programme

People with a learning disability, autism or both often have poorer physical and mental health than other people.  We know that we need to understand why so that we can make a difference to people’s lives.  As part of this understanding, the Learning Disability Mortality Review Progrmme – known as LeDeR - is being delivered by the University of Bristol and commissioned by the Healthcare Quality Improvement Partnership (HQIP) on behalf of NHS England.  The overall aim of the programme is to drive improvement in the quality of health and social care services delivery and to help reduce premature mortality and health inequalities.     

All deaths of people with learning disabilities aged 4 years and over are being reviewed by health and social care professionals using the LeDeR framework, regardless of whether the death was expected or not, the cause of death or the place of death.   All learning disability deaths of individuals aged 18-24 and all deaths from Black and Minority Ethnic (BME) communities must be subject to a multi-agency review known as a Priority Themed Review.  The reviews aim to positively influence practice and policy by:

  • Identifying the potentially avoidable contributory factors related to deaths of people with learning disabilities.
  • Identifying variation and best practice in preventing premature mortality of people with learning disabilities.
  • Developing action plans to make any necessary changes to health and social care service delivery for people with learning disabilities.   

The Annual Review of the programme has just been published, highlighting the mortality gap for people with learning disabilities has increased since the last report – on average women with a learning disability die 26 years younger than the average population and for men the gap is 20 years.  The report also highlights that, for a range of reasons, only one in ten deaths has been reviewed.  We need more reviewers locally and across North Central London, from all disciplines, agencies and teams to support this important work and staff are encouraged to undertake the Reviewer Training and be part of the Programme.

 The North Central London Partnership are committed to completing LeDeR reviews and ensuring the learning influences improvements in learning disability care and support.